When I started blogging at No Holding Back three years ago, it was after my infant daughter died due to complications of twin to twin transfusion Syndrome (TTTS). Not only did I need an outlet for my grief, I wanted to bring as much awareness as possible to TTTS. Because for those of us who have lived it, we KNOW that awareness saves lives. I have made a valiant effort the last three years to try to bring awareness to TTTS through a weekly series – TTTS Tuesday. I even branched off a new website dedicated entirely to TTTS because I wanted a special place where none of my product reviews or parenting ramblings interfered with the message at hand.
On TTTS Tuesday, I share stories about TTTS journeys. The many very different journeys.
And I’ve decided to take these stories and turn them into a book. As another way to raise funding for the organizations that support TTTS families and grieving families.
If you have lived through TTTS, I would like you to encourage to submit your story to share your journey for other parents who may be going through this and to continue to bring awareness to this terrible disease.
The book is going to be a collection of TTTS experiences as told by the parents. The good, the bad, the happy, the sad.
I am looking for stories about your diagnosis and pregnancies, outcomes, NICU life, PTSD, grief and recovery, philanthropic endeavors to raise money or help others, and any long term issues that TTTS has caused for you. And especially stories about how TTTS has changed your life and your family.
Everyone will receive full credit for their work.
I want the book to be something that a family diagnosed with TTTS can read to learn about the many facets of TTTS, but also comfort anyone that has survived it, educate family members of those with someone going through TTTS, provide encouragement, and provide ideas for ways to give back.
I would love as many people to contribute as they want! You can pick any of those topics or even something else that I may have missed but is on your heart to write about.
Submissions should be no less than 350 words (unless it’s poetry) and no more than 1000. If you’re having a hard time condensing, you might want to consider breaking it into multiple submissions based on different topics.
Pictures are encouraged, but you must send high res jpegs to me or I won’t be able to use them in the book.
Please email your submission by No LATER than Feb. 13th (my girls’ original due date) to firstname.lastname@example.org
Once the associated costs are recouped, the proceeds from sales of this book will go to the Fetal Hope, Sunshine After the Storm, and the TTTS Support Team, Teeny Tears, and the TTTS Foundation. If there are other groups that support the TTTS community that you think I should include, please let me know.
I’m also interested in beta readers to help proofread and critique the book before it goes to print.
Email me at email@example.com with submissions/questions/etc